Advancing the Patient EXperience (APEX) in COPD registry: Study Design and Strengths
Barbara P. Yawn, et al. J Am Board Fam Med 2021;34(1):22-31.
Aiming to provide a mechanism to standardize and store data on COPD patients seen in primary care in the United States, this paper describes the study design of the APEX COPD registry and to summarize its strengths.
Development of the Advancing the Patient EXperience (APEX) in COPD registry: a modified Delphi Study
Chelsea L. Edwards, et al. Chronic Obstr Pulm Dis 2020.
Recently accepted in the Journal of the COPD Foundation, this paper describes the process of reaching consensus among 14 primary and secondary care experts on a standardized list of demographic, disease monitoring and treatment variables to establish the Advancing the Patient Experience in COPD registry.